I met with the doctor today. He said we are going to put off transplant a while longer. His reasons were I'm not on oxygen (some people never go on oxygen before transplant). I am relatively healthy compared to other Cystic Fibrosis patients (I always have been). Bottom line is He thinks ultimately I will live a longer life by putting it off as long as we can. His exact words were "Tina, If we did the surgery and you die then I'm going to feel really bad knowing you could have had more time with your family." OK. Reality check. More time is a good thing.
It's just that I have to adjust. Again. Transplant is still looming out there, in front of me. I was ready to get it behind me and be well or at least better then I am now. I long to breathe and not think about it. I want to make plans that don't have to be cancelled at the last minute because I'm in the hospital. I want to work again. I want to have more energy. I want it all. Right Now! Ugh, I am an impatient patient.
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A Wandering Traveler on the Journey
- Tina
- Tennessee, United States
- I have Cystic Fibrosis. This blog started as a way to communicate my adventures on the way to a bilateral double lung transplant. I am grateful to the many supportive people in my life who read my musings. May my journey encouage yours.
2 comments:
Thanks for keeping everyone updated on your life! When I think of you I say a prayer - cannot imagine going through something like you are! You speak from the heart - God cares about all of that! work at CB - in the office at manassas.
So sorry girl. I ache for you.
Colette
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