Monday, June 29, 2009

Time Marches On.....

Two weeks ago I laid in a hospital bed.

One week ago I laid in the sun listening to the familiar rhythm of the waves of the ocean.

Tonight I lay in my bed, safe, sound and secure.

I am grateful that I am not where I was.

I am grateful that I don't know what lies ahead.

I will rest in this moment.

Wednesday, June 17, 2009

Saying goodbye

Tomorrow we will be at Sunny Shores Sea Camp in Vero Beach. This is a family vacation that we partake of every year. It's a time to come together with others like me who have Cystic Fibrosis. There will be a familiar face missing this year. My dear Doctor Mckey passed away a few months ago. He was my pulmonologist in Miami. He was my doctor for over 30 years, watching me grow from a weak toddler misdiagnosed with a "failure to thrive" to being a Mother of two children. I was blessed to have him be part of my life. I will miss him.

For more info go to http://www.sunnyshoresseacamp.org/

Friday, June 12, 2009

Acceptance

When it comes to hospital stays, I am a frequent flier with lots of mileage points. This is my third stay this year, my 6th stay in the last 12 months. I used to go crazy when I had to go in the hospital. I hated it, I felt like life was passing me by and I was stuck within the confines of four sterile walls.

As the years have gone by I have learned to accept, relax and even enjoy aspects of my hospital stays. By the time I usually land here I am sick enough that I am grateful for the reprieve. Where else can you spend time just sleeping, reading, writing, watching TV and playing video games while others bring you your food and clean your room. I am grateful to have a soft place to lay my tired head. I am able to rest without the burden of daily life chores (cooking, cleaning, taking care of others.) I've come to embrace the fact that life is not passing me by, this is my life.

Wednesday, June 10, 2009

Home Away From Home

I've been feeling extra tired and congested for the past few weeks. I went to the doctor last week. They told me I wasn't sick enough to meet medicare criteria to be admitted to the hospital. So I spent a week getting sicker which will now take me longer to get better. This is an example of the inefficiency of Medicare; Save a penny, lose a dollar.

I will not go into complaint mode about our health care system. I can hop on that soap box and cry out to all who will hear for quite a while. I don't have the energy for that right now. Give me a few days on IVs then I can rant and rave again.

Right now it's time for rest, relaxation and Jeopardy

Tuesday, June 2, 2009

Deep Thoughts

Today I pondered the phrase, "you want to have your cake and eat it too"

What good is a cake you can't eat?

Monday, June 1, 2009

Morning surprises

It was early this morning when I heard my son's blood curdling screams. My heart raced as I pictured him covered in blood with his hand or some other limb cut off. When I got to him in the living room I was relieved to find no blood but looking at him I could tell he was scared out of his wits.

The object of his fear was a two foot snake that had made his way onto our back deck. My dear boy had almost stepped on the slithery serpent when he went out to do his morning chore How this vile creature got there I do not know. Our deck is 15 feet off the ground. Did it drop from the trees? A kamikaze snake on a mission to scare the bejeebers out of us.

My son has adamantly stated he will never go outside alone again. Never is a long time. I hope he changes his mind.