Sunday, November 25, 2012
Being purposeful now.
We have spent the last four days in Georgia with my Mom, Sister, Aunts, Uncles and lots of cousins. I am reminded again of how blessed I am. We had an incredible spread of wonderful food on Thanksgiving with enough leftovers to allow us to graze for days.
My family loves me. I feel their support and blessings as I travel tomorrow. Our children will go back to Athens to be with friends while Tom I head to Durham, NC. I will spend this week at Duke hospital completing pre-transplant testing.
I have been purposeful in not thinking about what this coming week holds. There are some intense and invasive tests to get through in the days coming up. I have been purposeful in trying my best to be fully present while being here with my family; not allowing my mind to wander to the worries of the what if's. I will continue to take life one day at a time, one moment at a time.
Life is fleeting. There is a time and place for everything. Now is the time for rest. I choose peace in the present knowing the future will come and when it does, I will be ready.
My family loves me. I feel their support and blessings as I travel tomorrow. Our children will go back to Athens to be with friends while Tom I head to Durham, NC. I will spend this week at Duke hospital completing pre-transplant testing.
I have been purposeful in not thinking about what this coming week holds. There are some intense and invasive tests to get through in the days coming up. I have been purposeful in trying my best to be fully present while being here with my family; not allowing my mind to wander to the worries of the what if's. I will continue to take life one day at a time, one moment at a time.
Life is fleeting. There is a time and place for everything. Now is the time for rest. I choose peace in the present knowing the future will come and when it does, I will be ready.
Saturday, November 17, 2012
I cry
When peace cannot be found
And sleep won't visit me tonight
A restless mind that I can't tame
I walk the floor I call Your name
Finally silence and the tears begin to fall
I Cry
And You're the one who hears me calling
I fall
So easily but You're there to catch me
Say the words that heal me
I'm safe when I'm with You
You touch my eyes and I can see
Oh the comfort that You bring
When nothing else can reach inside
Sympathetic friends are all around
Their soothing words fall to the ground
In silence I feel You here with me
I Cry
And You're the one who hears me calling
I fall
So easily but You're there to catch me
Say the words that heal me
I'm safe when I'm with You
You touch my eyes and I can see
Song by Russ Taff
Friday, November 9, 2012
Rebelling and relinguishing
"I think it would be wise if we head toward transplant." the doctor said.
For years I have been waiting to hear these words. Relief and resistance comes at the same time. How sweet to think the struggle to breath could come to an end, how terrifying to think of The End.
"What if I refuse and say not now." I ask.
"I don't know if you will survive another exacerbation."
My mind begins to reel out of control. I fight my defense to argue , "You don't know me. You don't know how I bounce back." The audacity of this man to predict my future. "Do You think you are the first doctor to tell me that this disease will kill me."
After the surge of panic is over I can see this doctor is not trying to predict my future, he is not telling me how it's going to be, he's not telling me what to do, he's just stating his opinion based on his knowledge of the facts on paper. He is kind and compassionate.
I remind myself to lay down my shield, there is no need for defense, no need to rebel. I am in control, I am in power.
There is a part of me that is relieved and ready to relinquish; wanting to lie down and float on this new current wherever it will take me, knowing there are rapids up ahead. There is part of me that clings to shore, afraid of the water, fearing that I may drown.
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