Still holding my own

Today I went for a routine check up at Duke hospital. The good news is I am still "clinically stable". The doctor said I am standing in the doorway of transplant but he would advise not walking through yet. More time on this side usually means more time overall....the risks are high with no money back guarantees. As long as I am able to function fairly well, my oxygen levels stay high and I can continue to ward off infections then I need to continue waiting.

The bad news is my lung function is down by 14%. This is hopefully just the beginning of a flair-up and not indicative of a permanent downward trend. Time will tell. This also means another hospital stay is needed soon. It's been almost 11 weeks since my last hospital visit.